Support for Parents Carrying the Invisible Weight of Rare Disease
A free, gentle toolkit created by a licensed therapist and rare disease parent to help you find calm, clarity, and connection — even when life feels overwhelming.
If you’re parenting a child with a rare or chronic illness, you’re likely doing more than anyone can see.
You’re managing appointments, medications, school concerns, insurance, and advocacy — while
trying to stay emotionally present for your child and your family.
And somewhere along the way, you may have disappeared from the picture.
The Resilient Parent Toolkit was created for this exact place.
Who Is This For
This toolkit is for you if:
You feel emotionally exhausted or constantly “on edge”
Your life revolves around your child’s medical needs
You feel guilty taking time for yourself
You’re holding grief, fear, or anxiety that no one talks about
You want support that feels understanding — not overwhelming
What Makes This Toolkit Different
This is not a checklist or productivity guide.
It’s a nervoussysteminformed, compassioncentered resource grounded in:
Over 20 years of clinical experience
Lived experience parenting a child with rare disease
Realworld tools that fit into alreadyfull lives
No fixing. No minimizing. Just support.
What You’ll Receive
Inside the Resilient Parent Toolkit, you’ll find:
Gentle grounding practices for highstress moments
Reflection prompts to help you reconnect with yourself
Tools to reduce emotional overwhelm and caregiver burnout
Language to help you respond — not react — during hard moments
Validation for feelings you may not have felt allowed to name
Everything is designed to be practical, accessible, and human.
About The Creator
I’m Ronda Thorington, MA, LPC — a Licensed Professional Counselor, parent coach, and
mother of a child with rare disease.
I created this toolkit because I’ve lived the moments where strength is expected — but support is
missing.
You don’t need to be stronger.
You need to be supported.
Download The Resilient Parent Toolkit
A free resource created to support you — not just the role you carry.